Saturday, August 12, 2006

Update on Jeff's dad, Walt.

For all my prayer people out there, I got a new one for you. Jeff's dad, Walt will go in for his prostate cancer surgery on Monday, August, 14th at 7:45 am in Atlanta, GA. Some of you may be wondering why Atlanta since they live in Florida. They are travelling to have one of the best prostate surgeons in the country operate on him. Their alternative was a military contracted dr. who told him that he wouldn't bother with surgery and he only had 3 years to live. The second dr. said "hogwash" that he had a great prognosis and of course they would remove the cancer. I liked what he said, "the best cancer is one on the shelf in a jar somewhere."

In case you haven't caught in the 20 other times I have mentioned it, ALWAYS GET A SECOND OPINION.

The bummer for them is that their insurance is not covering very much of this surgery, but I know that you get to a place in life where you can't put a price on the sacrifice you will make financially to receive the best possible chance, and you just have to take the leap of faith and work the money part out later. It may sound trite, but its reality.

He will have his entire prostate removed, unfortunately other options such as seed radiation, etc. are not things he is eligible for. He will most likely have radiation in the future.

Our prayer is that the cancer will be completely contained in his prostate (like me, we want clear margins) with NO LYMPH NODE involvement. I am also going to throw out a very specific prayer that all his nerve endings remain intact and that he has many years ahead of him of enjoying the "finer things of marriage." This is not at all an unreasonable request from a medical standpoint, and since those "finer things of marriage" are responsible for the birth of my wonderful husband, I say more power to you! We also want to pray that there is no spreading of the disease to the seminal vesical, or other local areas.

Since Jeff's sister, Stefanie, lives in Atlanta, they will be able to stay with her until he is well enough to travel home. We will try to update you next week with his status.

Today is a new day, I think.

Its an interesting week to live this new life of major changes. I often feel like I am on the outside of someone else's bad dream waiting to be awaken by some alarm clock. Then I realize that this reality, for this season of life is not something for me to fear, but to try and work along with. I am feeling better than I had expected to feel coming into the chemo phase of this fight. Though no amount of preparation or reading can prepare you for the general feeling of yuck that becomes the norm.

I have become thankful for the times I don't feel like I am going to puke. For me, the experience feels a lot like when I was pregnant. I am never quite 100%, not puking, but always feel like if I smell the wrong thing, or taste the wrong thing, the possibility is there. I have learned that I need to eat and drink something IMMEDIATELY upon getting up or the nausea hits me like a brick wall. I am not normally a breakfast eater, but we have tried to keep things on hand that I can eat in a hurry. I am tired, not exhausted, but I feel like I have lived a whole day by about 4:00 pm. I think in the coming months 9 pm may become my bedtime.

Today, it is raining outside and it feels very much like how I am feeling about life right now. I am not depressed (after a bout with post pardum depression, I have no problems seeking anti-depressants if or when the time comes, I've been told this is very common with people dealing with sickness/cancer/chemo.)

I am just feeling like I need to find my way in all this. I must say in light of Jeff's loss of job, I feel even more useless then I did before. I know I will be a virtual blob over the next 16 weeks as I try to keep up my strength and fight this disease. I struggle with knowing that I won't be the best mom, the best wife, the best friend or the best employee I can be. I know my "job" is to fight this cancer, but let's face it, that is just no fun. I know that this is a season, that won't last forever and all that junk about how I will be stronger for it, be glad I did it, see God through it, yadda, yadda, yadda. I struggle with not having the option of being the one who can go out and work more to help the family job/insurance issues. I hope to return to Starbucks part-time in a few weeks, but I would be kidding myself if I thought I could do it more than 15 hours a week for the next few months.

I am trying hard not to think about Jeff's job loss. If I do, I waiver back and forth between panic and fear. Its not that I don't trust Jeff, his abilities or even God's provision. The reality is I know God does not promise us the level of comfort or financial status we may once have attained, there is just no promise there. I know we will not be homeless, hungry, left by the side of the road and all my other thoughts from there are just plain selfish. We are in process of building our dream home. This is the home we had designed to live in for decades, watch the kids go off to college, or retire in. This was the last stop of home ownership for us. We love this house, this land and all the plans we had for it. Now, I feel sick even thinking about it. What if its not in God's plan for us to have this house? What if we were being too materialistic about it? What if His plan is much different for us then we had set out for ourselves? I was so excited about the house a week ago. It was such a wonderful distraction from cancer. I enjoyed going out to the house and seeing it be built up a little more each visit. I almost felt like the more I got broken down physically, I could look forward to it being built up. Now, I am resentful that I don't feel excited about it anymore. I resent that I am scared that a lack of job will suddenly eliminate our chances of moving in. The house is set to be done in November and I was looking forward to it being a new beginning after my chemo treatments end. As it is now, if I keep on my current chemo schedule I will finish with chemo November 14th, and our house is scheduled to be done November 20th. I struggle with guilt that we even had the opportunity for this kind of house and that I am being greedy about it. I struggle with resenting our current apartment. I know God provided this place for our family, that was exactly what we prayed for...a place in Bethany's school district, with 2 bedrooms, affordable, available for a short term lease, washer/dryer, dishwasher. It is exactly what we asked for when we didn't know where we would live between our last house and our new house. I never would have imagined when we signed the lease here that I would be facing going through chemo here and I feel guilty being resentful about it.

The light in all this is Jeff. He is the embodiment of the vows, "for better or for worse" He doesn't complain and doesn't waiver in all this and I am humbled by his strength. (I am tearing up as I write this) Even since he lost his job he has been a rock. At first, I thought he was just trying to be "strong" for all of us, but then I came to realize in recent days that he really does feel like we will be OK in all this. When I become ungrateful of this place we live in, he chimes in with a reminder of how grateful we need to be for this place that is more than enough and more than a lot of people have. He is on far less sleep then me (or any of us) in all this and when I rise he is doing something for the family and when I go to sleep he is doing something for the family. I am humbled to wonder if I could have the same type of strength he has had if the situation was reversed. (I don't want to be tested on that God, in case you are wondering.)

As far as the job search, Jeff has updated his resume and will post it on all the major channels as well as send it to some of you who've inquired. He is also vigourously pursuing his previous contracts from his job that just laid him off. Since they got rid of all of this type of work he is free to pursue these companies directly for contract work. Some of them he has job experience going back 7 years, but he knows that he only has a very short window to produce signed contracts for work in order to give his family financial stability. If I had to write a wish list for his job, we would obviously prefer he continue to be able to work at home, but we also know this may not be realistic anymore. We will keep you updated on his status.

As for you, my readers of this blog. I must say I am humbled that anyone would care what my little words are on a daily basis. I know you all as caring people, but I know myself as a talker as well, and find myself quite surprised that anyone would indulge my babbling this long. I am humbled by the words the Lord gives me in my heart for writing in this blog (sometimes I type something and think, "did I write that?") Thank you for your continued feedback, I will keep writing as long as someone keeps reading.

Love and blessings,
Kat

Wednesday, August 09, 2006

new address

For those of you who have asked...

Our new address is:

The Werner Family
212 Ellett Rd.
Blacksburg, VA 24060

phone is still the same: 540-552-4321

Its 10 pm on chemo day two, still feeling good, but very tired. Good night all.

Kat

Update on chemo and other news...

I made it through my first of 8 chemos! The whole process took about 4 hours. I met with my oncologist (the first time Jeff has met him). The Dr. joked with the medical student he brought in with him about how I was the patient who told him what chemo I was going to do and he was along for the ride.

They took a blood sample to check all those "counts" I explained before. They all came in normal.

I sat down in the chemo room (a horseshoe shaped room with comfy recliners around the outside and nurses station on the middle) I will try and post a picture sometime so you can see my experience.

The most painful part of the process was when the took the bandage off to access my port on my right arm (boy I wish someone could come up with an ouchless tape for hospitals) I felt a stick when the put the needle in my port, especially since it is still so new, it is tender. The good news on this is that they gave me a prescription for numbing cream to put on that site before I come next time so I won't feel that again. I didn't feel burning of the meds going in, like some people described. The first half hour was all anti-nausea meds. The second part was a giant syringe the nurse inserted by hand, it is the "A" part of the A/C treatment. It looks like fruit punch (very red) and it took about 15 min. The last part was an IV bag, the "C" part that took a little over an hour.

I ate lunch during treatment (Jeff was there with me) and watched my little TV they provide. Had a long talk with the nurses about what I was facing in months ahead and also caught up on their personal lives. Susan and Christine will be my regular nurses each Tuesday treatment.

I was fine until about 8pm when the nausea hit. I never actually threw up. Dry heave a couple of times, almost wished I would throw up at others. I took 2 Promethazine tabs over the course of the night. They really knock you out. By about 11 pm I figured out that sucking on ice chips helped the most. I couldn't even stand the smell of anything food wise, but found out that popcorn was ok, it was a light flavor, dry, just enought to get something in my stomach. I went to bed about midnight. Did not feel sick all night. Woke up about 11 am (something I haven't done in years). So far today I feel tired, but no nausea. I am trying to stay on top of it with regular meds, etc. I have eaten a bowl of cereal and a leftover sweet potato. The one bummer (that I had been warned of) is that I have very little taste. The chemo leaves a metal taste and sucks up most of your saliva so I have dry mouth and little taste for the next 4 months.

On to other news, big news. Jeff lost his job yesterday. I know, I know, it could not have come at a worse time. He got the call at about 6pm last night. It has nothing to do with my health, our move, etc. They are getting rid of his whole section of the company. It is only an 8 person company to begin with, so 2 guys will be laid off. His last pay check is August 31st. We knew this was a possiblity for several years now. (This is the main reason we moved to Blacksburg) but as you can imagine the timing really, truly, could not be worse. We have gotten the company owner to agree to extend our health insurance as a "non-salaried employee" until the end of December. This is huge, because even though we will have to pay for the insurance ourselves back to the company, we will not have to pay the COBRA rate which could be thousands of dollars a month given my current health status. We don't know how this will affect our construction loan for our new house, as well as a thousand other things. We feel we have the resources to get throught October. In the meantime Jeff with turn over every rock, send out resumes over a 100 square miles and follow up with all leads. If you all know anyone who needs a computer Developer or Application manager that can work from Blacksburg, Roanoke or Salem (telecommute or commute to local office) please let us know.

Spiritual and emotionally I am tired and wrecked by this latest development. I am trying to do what I can to mend my own body. I am tired of talking with God, I speak to him in whispers of my heart throughout the day, but as he says in his scripture, he knows the prayers when I have no words to say. I embrace your prayers and encouragement now more than ever. I have realized that there are a special group of you that still read this blog, still write back to me and still send encouragement even 2 months into this battle. Trust me when I say, I still pour over every word and need them so much. Thank you for being the continued support to us through this.

Blessings,
Kat

Monday, August 07, 2006

Back Online...



Hello all. After many days and moving (arghhh) we are back online and settling into our new, somewhat "cozier" new digs. I will refrain from using the expression "smaller place" as I believe outlook is half the battle, but who am I kidding, it is quite a bit smaller.

First, the details...

I start chemo TOMORROW, Tuesday, August 8th. My appointment is scheduled for 9:45 am. Tomorrow's appt. will be longer than most, as they introduce me to the joys that are chemo. Every week's chemo will be dependent on some major factors before they will continue with the regime. So, I will start tomorrow assuming that my white blood cell count is normal (you will here me refer to this A LOT in coming months, as this is one of the most important things in my chemo. (Quick medical lesson, for those of you, who like me, had no idea what all these cell things meant until confronted with the necessity of knowing)

White blood cells (WBC) = germ fighters. The more you have the better, even in healthy people, your white blood cell count will drop when you are about to get a cold, have the flu, etc. Since the chemo will be killing cells (targeting the cancer cells, but good cells get whacked along the way as well) I will have "dips" in my WBC, usually at their 7-10 days after each one of my treatments (assuming I avoid all illness). I will need to have a shot the day after chemo each round to force these WBC into recovery (this is part of doing the Dense Dose treatment) without DD, they would recover on their own in about 21 days. A good count is 3,800-10,800. Any thing lower than that the day I enter each round and they will have to postpone that round until they rebound.

Platelets = blood clotters. We need these to make sure we don't "bleed out" when we are cut. They also repair damage to your blood vessels by helping form blood clots. I had a problem with really low platelets during both my pregnancies. I did not have to have a platelet transfusion, but came dangerously close to having to have one. I am praying this problem doesn't rear its ugly head once again. Normal platelets are 130,000-400,000. During my pregnancy my lowest count was about 30,000.

Red Blood Cells (RBC) = carries oxygen. They need to be 3.9-5.2.

Assuming all of these counts for me are in normal range I will begin chemo tomorrow. The one wrench in the gears is how I am healing from the PICC line I had installed on last Monday. After discussions with the surgeon and oncologist we decided to put the PICC in my arm. (A PICC is a long-term temporary port placed in a major vein or artery that allows them to put in IV fluids, or take blood samples without having to stick me each time, or look for a new usable vein for each round of chemo.) Especially for women, chemo tends to ruin a vein each round. It becomes increasingly difficult to find new usable veins for each round of chemo (especially with 8 rounds ahead of me). The first oncologist did not recommend I have one (I am still not entirely sure why), but others I have consulted with that have had chemo, as well as my current oncologist, all highly recommended one. We decided not to have a chest one installed (which is usually the norm) because the surgeon was concerned it would interfere with my expanders for my future boobies.

So, I had one installed last Monday. I had no problems (it was an outpatient procedure under local anesthetic). Its not what I would call an afternoon of fun, but I was glad to not have to go under general anethesia again ( I would have, had I had a chest port put in). It was sore and tender, but ok, until Tuesday. Tuesday, we started to move. I was told not to lift anything with this arm for several days. I did very well, except I had to lift Liam 2 times. Well, by Tuesday night it was bleeding through the dressing they put on, and the one I put on top of their dressing. (Yah, I know, not a good sign) I will talk more about my God sighting in the midst of this and the move a little later.

I called the Dr. And he told me that I had to lay down on the couch with my arm above me for the rest of the night. This was very difficult for me. Keep in mind, while I was laying there a team of people who had come to help us move were moving heavy things around me and I was literally flat on my back, doing NOTHING! This was tough for me emotionally. I teared up about it several times throughout the night I was tired of having this great spiritual and emotional lessons from cancer, someone else can have the "testimonies" for a change.

Wednesday morning, while the professional movers were at my house with Jeff, I was at the local emergency room getting a dressing change, an antibiotic and an arm sling (not necessary, but given to me so I would COMPLETELY stop using my right arm.) (yes, I am right handed) I went to the emergency room by recommendation of my dr. who put in the arm port, to save me a trip back to the hospital that put in the port (35 min away) so I could go to the local hospital, get the change and be back to the moving process. The port has not bled since. It was a little swollen when the oncologist's nurse looked at it on Friday, but she was confident I would be ok for my first round of chemo. So, assuming it is ok tomorrow, I will be ok to start chemo.

GOD SIGHTINGS....

This is one of my favorite expressions introduced to me by our best friends. It is simply an expression to show how we see God in the folds of our life, sometimes in unexpected places or ways. I have had a thousand of these since June 9th (my diagnosis day). I will focus on the last few days...

Moving sucks. There is no other way to describe it. There can be a move that is better than another, but it is never fun or a "good time". It is never something we long to do when you haven't done it in a while.

"Hey, what should we do on our vacation?"

"I don't know, how about something really fun, like moving?"

"Yah, we haven't done that in a while, it will be so much fun"

At 3:30 I was told to lay on the couch with my arm up. People were suppose to come and help us move at 4:30. I broke down. I was overwhelmed by the task that lie ahead. I was feeling defeated that I felt like God was allowing us to cope with the enormity of things that I didn't think I could handle it. My mom was there (she was leaving to bring the kids to my sister's house for the duration of our move) and she saw me hit my wall. She teared up as I cried and wondered how we would move everything. I felt alone, defeated and worried.

Then God showed up....

He showed up in the form of our church members. He showed up in the form of our real estate agent (equipped with truck). He showed up in the form of more than a dozen teenagers (some quite strong). He showed up with free subs from a dear member of our church who runs a local sub shop, more than enough to feed everyone ---Here is my free advertising for JIMMY JOHN'S SUBS, buy them, they are good--- He showed up in having a task done in 2 hours that we were sure would take us all night. He showed up in my mom who trekked the kids a half an hour away for two days. He showed up in my sister who had 6 kids in her house for more than two days and has NOT ONCE complained to me about taking the kids in the last 7 weeks. He showed up and He showed me up. It was more than I could handle, he knew that, and He handled it.

We have an amazing church down here that has surrounded us since day one of our diagnosis. When we needed people to help us move our stuff to our apartment (not our big stuff, that was done by movers) but people to pack our kitchen, cart our clothes, etc. they showed up. Not only did we need help moving, but we found out the day of our move that our landlord of our new apartment was not going to clean our apartment before we moved in. So one of the ladies small groups went our apt. and cleaned it for us before we moved in.

Our professional movers were also amazing. For those of you who know our story of our move to Blacksburg, you know we had a nightmare move (for those of you who don't know the whole story, just know that they got to our house 6 hours late and the driver had a 40 ounce beer in hand, use your imagination for the rest) These new movers were great. A huge endorsement for CROWN MOVING out of Roanoke, VA. Very fast, very professional. They were done moving our furniture out of our house in 2 hours, we were completely done with the move at 1pm!

Last thing, a bit of exciting news in all this. I got my first "fill up" in my tissue expanders at my plastic surgeon's office on Friday. Not much, 25 cc (future ones will be about 50 cc). I am probably just barely a "A" cup (ok, maybe just a double AA--yes, guys that is smaller than an A), but the boobie seeds have been planted! Just so you know I am shooting for 450-500cc total, this will be a good "C" cup size. I can get "fill-ups" as often as once every 10 days to 2 weeks. We are moving in the right direction for once.

Well that's all for today's report. I will try an update (or have Jeff update) tomorrow after my first chemo. I am including some Disney pics and recent pics so you can see me before I lose my hair (probably sometime in the next 1-3 weeks.)